Hyperlexia: My journey to understanding the condition.

Hyperlexia:  My journey to understanding the condition.

Most parents whose children have a learning challenge look at me with a blank stare when I mention the term Hyperlexia. The same seems to be true with the professionals working in the learning disability field.

Why am I concerned you may ask. I am hyperlexic and I don’t want youngsters (or oldsters, as a matter of fact) to be mis-diagnosed or partially diagnosed as I was twenty years ago. It frequently happens.  When the tester or the learning disability specialist isn’t aware of hyperlexia they lump the child or adult into the dyslexic category. Why?  Both hyperlexia and dyslexia are conditions that affect reading.

Let’s review. Dyslexia means one has a hard time reading words, sounding them out and probably has a poor vocabulary. On the other hand, hyperlexia describes an individual who has difficulty comprehending what they are reading because the individual is not capable of imaging the words they are reading.

Here’s an example.  If someone says: the cat has a pink tail that wiggles, a hyperlexic sees the words but not the images of the cat. Imaging gets much more challenging with complex words.

I was diagnosed as dyslexic twenty-five years ago when in my forties. The testing office said there was nothing that could be done.  I began searching. I discovered quite quickly that I had mastered sounding out words, reading words, and knew I had an excellent vocabulary. It made me wonder.  Why am I a dyslexic?  No one had a response.  I decided that the problem was psychological and embarked on several years of inner exploration.  And, I was advised to remove refined sugar from my diet.  Both the psychological work and the elimination of refined sugar improved my condition some.

In my mid-sixties I attended a lecture given by Nanci Bell of Lindamood-Bell who described the differences between dyslexia and Hyperlexia.  I knew immediately that I was Hyperlexic. Yes, comprehension was my problem. Testing at Lindamood-Bell revealed I had Grade Three reading comprehension skills (and I graduated from the Yale University Drama School).

Parents:  here are some tricks that we, hyperlexics, use to mask our condition:

• When we are talking with another and we don’t understand what is being said we change the subject, or we ask questions hoping that we will get it.
• We talk in generalities.
• We don’t remember what we see or hear and get the person to describe the scene again.
• We use a word, phrase or sentence hoping we are close to what is being demanded.
• We take a long time to get a word.  I find people get impatient waiting for me to say what I know so I will jump in with a phrase praying I am close rather than waiting for the word to come.

Skills a hyperlexic has that makes expressing ourselves difficult for us:

• We are very good at FEELING the whole picture of what is going on in a situation. These feelings can be difficult to verbalize sometimes because:

1. We don’t safe in describing what we see.
2. There is so much jumbled in our brain and feel we must rush so we make up phrases.  e.g. “There are one too many few.”  This was a phrase I said to a waitress when a teenager meaning –  there are too many of us and too few chairs.  This strange way of expressing myself began happening frequently. My parent began calling them Annisms.

Once I discovered the accurate diagnose I took three steps.

1. I signed up for the verbalizing and visualizing training at Lindamood-Bell. http://www.lindamoodbell.com.  It was very difficult to learn how to image but I moved myself from Grade Three to Grade Nine reading comprehension level.
2. I worked with the Masgutova Method to correct my reflexes that were not functioning correctly. http://masgutovamethod.com. An individual’s reflexes are developed while in utero and during the first three years of life.  I discovered that twelve of mine were not operating at optimal level (e.g.) I was unable to crawl when lying on the floor – my left side reflexes did not work.  I decided to combine my emotional issues with the reflex corrections. It was an arduous process but my reflexes corrected over a year and a half.
3. Simultaneously I worked with a friend weekly on reading, utilizing the Lindamood-Bell techniques.  It was a painstaking process. Once my reflexes corrected themselves, my emotional behavior balanced itself and I became a more confident as a reader.  My friend was truly a saint.

In summary, comprehending what I read is still challenging. I have to be bold asking my friends to give me an image or images to describe a word they used when the meaning isn’t clear to me.

I hope my experience with Hyperlexia gives you some tools as you help your child or yourself with reading or aural comprehension. My wish is that the term Hyperlexia becomes a common phrase in the learning disability lexicon.  And, parents, when having your child tested be sure the testing officer is skilled in testing for hyperlexia.

For more information on my experience check out the article I wrote which is posted on this website.  http://dyslexiadiscovery.com/dyslexia-hyperlexia-and-beyond.